@grandmaof1 posted:Kk- my cuffitis is very painful with the urge to go. My back hurts so bad. Sometimes I sit in the bathroom and just shake because it feels like I have to go. I am on Canasa suppository and a new one called Tacrolimus 2 mg suppository 2 times a day. It is helping but not as it did at first. It has to made at a specialty pharmacy and our insurance doesn’t cover it. That is why many doctors don’t use it anymore. So we pay out of pocket. I just had my yearly scope done. Everything else is fine except my cuffitis. I have had it since 2018. I am almost ready to go to a bag. The pain and the liquid diarrhea is so unreal. My GI doctor said it’s like just like UC. It’s exhausting to have.
What do you do for it? I’d love any new advise. It’s so appreciated.
If your only problem is cuffitis, and it’s bad enough to consider surgery, then there is a surgical procedure to correct it, called “pouch advancement with mucosectomy.” The rectal cuff is removed and the pouch is moved right up to the anal canal and hand-sewn there. It’s a technically difficult procedure that I think should only be done by a surgeon with plenty of experience at it, and it does carry an increased risk of leakage or incontinence. I think I would choose it over going directly to an external bag, but each of us has different preferences and risk tolerance.