Skip to main content

Reply to "Is this pouchitis?"

grandmaof1 I have experienced bowel obstruction. For several years I would have pain in my stomach more sick at my stomach sometimes throwing up. Then one time same symptoms but figured  stomach virus (diarrhea/throwing up) because it was all around me.  Then I got really sick. I could not eat or drink anything without throwing up and nothing but watery stuff coming out then Hopefully you are near to ones that know about j pouch as I suffered long time before getting relief.  Moved to different hospital with different doctor. Having meds and only IV the obstruction was corrected. Doctor wanted me in better condition before doing surgery. When opening me up part of my bowels were attached to my female parts and had scar tissue. Doctor took care of it and fixed the somewhat pouch prolapse. Doctor described to me that he thought the recent years I had bowel obstruction but it corrected itself but didn't the last time. I know I have said a lot but I figure if I can share my experience to shed light on things for another that is what I should do. On another subject when having issues asked doctor (different doctor) about other issues I was having and he said some kind of infection but not UC or Chron's.  Later diagnosed with cuffitis learning that is where the part left to connect pouch. Still part of my original stuff so really just UC way I look at it but given different name. Seems it becomes a different name according to location. UGH!!!! I am tired of learning and struggling. One thing I know without God I would not make it through each day. My prayer is that by sharing some of my experiences I can help another. Also prayer that more doctors will become knowledgeable about the J-pouch.  What symptoms do you have with the cuffitis? Asking because I always knew when I had pouchitis as I suffered with it for years. The last few years I have only been diagnosed with cuffitis. Now I am not sure if I am just struggling with the cuffitis or have the pouchitis again.

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×