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Is this Pouchitis?

Hi Everyone!

I'm so happy to see this website and forum are still around. I had to re-register as it's been many, many years since my last visit.

Since mid-March when I stopped commuting to work and started quarantining at home like many others, I have had nothing but issues with my j-pouch. It all started with extreme urgency, smelly stool, and night accidents. I have never had an accident at night in the 14  years I've lived with my j-pouch. I talked to my doctor and went on a 10 day course of cipro and flagyl. This got rid of the smelly stool, but the consistency of my stool then became watery. Because of this, the urgency is still there. Picture pouring a glass Metamucil into the toilet (or don't; this may be TMI). Metamucil, Pepto Bismol, Immodium - nothing helps.

I have had  a pouchoscopy and the doctor said he sees inflammation and indicated pouchitis. I went on another 15 day round of cipro/flagyl and there was no change. I am now starting my 3rd 15 day round of cipro/flagyl and am not feeling hopeful. Is this truly pouchitis?

I remember reading one of @Jan Dollar's posts years ago stating that the j-pouch eventually becomes more colon-like, and this was the case for me. I really can't understand how my stools changed from thick/normal to water-like so quickly and have not returned back to normal in over 4 months.

I need advice! What do I do next? My doctor doesn't seem to have a roadmap for me, and I feel like I may have to live with my new-normal j-pouch function.

Thanks,
Peter

 

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