Reply to "Is there any hope for someone like me to not require a permanent ostomy?"

Hey Len,

I have taken a few days to respond because I have read and reread your post several times.

I understand your concerns because although I don’t have FAP, I had high grade dysplasia lesions in my rectum. I was never given a option for hand sew/mucosectomy.

Therefore I have a rectal cuff and residual colitis in that area. I take canasa daily to prevent cuffitis/inflammation/dysplasia.

having said all that, I have informed my GI he must treat any residual colitis aggressively since I absolutely do not want to submit to another surgery/ileostomy.

i have played out in my mind what I would do if I ever faced the above.

Could be one of the following:

pouch advancement

redo

kpouch

i would talk to surgeons who perform redo’s. Like a dr remzi. Surgery is a guarantee of nothing and who knows what you will wake up to, so you have to be in really good hands.

but like you I will do almost anything to avoid a permanent ileostomy.

3/6/237:28 PM

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