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Reply to "Is there any hope for someone like me to not require a permanent ostomy?"

So sorry you're having to deal with this. I don't have FAP - but I did have high grade dysplasia after 40 yrs of UC. I  had a colectomy with mucosectomy - all the mucosa removed -because of where the dysplasia was located.

You've got time to gather a few opinions from highly experienced surgeons  to  help you chose what's right for you.  When you begin to narrow down which medical center you'll use, consider having the pathology slides themselves sent to be read by the pathologists there.  I had my path slides sent to Columbia for a second read when I set up my consultation with Dr. Kiran. Interpretations do vary, and most pathologists don't have extensive experience reading j-pouch biopsies.  

After you weigh the options, please post back and let us know what you decide to do.  

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