So I had an over due colonoscopy on Feb 22. 2023.
I'm 45 years old and inherited familial polyposis
Further, at age 23, 21 years ago my surgeon then @temples pursued a sub total colectomy with an ileo rectal anastomosis and jpouch.
I have a sigmoid/rectum remnant of colon and the jpouch dr rolando rolandelli gave me
The colonoscopy showed tubular villous adenoma with dysplasia, low grade in the jpouch AND the rectum.
The biopsies came back abouts 2/27
I have the path report hete and the operative/colo report
My gastroenteroligist said he can remove the polyps with dysplasia but they'll grow back
An ileoostomy appliance would devastate me should it be permanent following the 2nd bowel resection. I am facing.
Is mucuosectomy down to the anal transitional zone /debate line an option for me to remove everything and keep the spincyer and maybe get a hand sewn pouch done instead of double stapled?
I.e less rectal mucosa ?
I am just adament about an appliance becoming permanent. I sweat alot I power walk everyday most mornings
My dad had colon cancer diagnosed age 58 he had to have a stoma done he died at 79 from stroke complications not fap.
I'm going to fox chase cancer center soon I faxed my path and colo reports
I want to know from other fap patients/members do adenomas come back in the ideal pouch once they were there if the jpouch is removed with the sigmoid colon I have left and the surgeon does an ipaa on me the right way and hand sewn this time?
This is another major surgery if I can't just continue survillience and he remove the dysplasia polyps
I had a nice run 21 years from aged 23 with frequent scopes to have lived this long with the ileo rectal anastomosis
Can dr rolendelli do a kpouch if I'm adement about an ileo with a bag?
I have eczema issues on my hands and arms and I'm not ready for a bag . Temporary I can understand 3 months while an ileal pouch heals
The polyps found tubular adenoma are from the jpouch and in my natural rectum since I have both
Rolendelli has my colo report and path report.
Anyone here had bad polyps with low grade dysplasia presentation and a jpouch that needed to be removed could your surgeon do a kpouch ? I would see dr Kiran at ny columbiaor rolandelli at Morristown. Can tubular adenoma with dysplasia dictate I'm not a candidate for another ileal pouch because they are in my ileum/pouch and my rectum?
Bill with fap if you come across this I'd love to hear from you and feel free to pm me too. You had a bad polyp in your jpouch and had it removed changed ti a kpouch
How often are you scoped? With a kpouch...do the dysplasia polyps get in the conduit/kpouch the longer you have a pelvic pouch?
Thanks for all experiences and any words of wisdom
Len