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Reply to "Is a normal life possible?"

I know you don't want to hear it again, but you are a relatively new j poucher.  It took me a long time to adjust to the pouch and I'm assuming it will take a while for you to adjust too.  On that note, it took a long time before I found a GI who helped me get on a good medicine routine to help my pouch behave. Don't give up the fight yet!

You may have developed antibodies against the biologics you've already tried and I'd encourage you to have them checked before taking any of them; but there are still others to try. I'm amazed at all the new medicines developed that are helping us j pouchers live better lives.  Sometimes it is a combination of medicines. I'd find a good GI who is willing to work with you. (Unfortunately, not all do.)

Often a GI will prescribe antibiotics before going the biologic route.  If those don't appear to be working, which was the case with me, then they may suggest a biologic.  Along with Entyvio, I take Budesonide and Imuran.  I also take Antripoline and lomotil at bedtime. 

 

 

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