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Reply to "Is a normal life possible?"

I'm gonna tell a true story about remicade and its blunt in areas 

Before I had my colon removed that's about the 3-5th thing they tried. Remicade.  Worked like a charm. I was miserable. Period. My uc was only just a few inches inside my anus. Rest of my colon was fine. But that little bit wrecked havoc on me. Which is surprising. I've seen pics of it and only a few ulcers.  They put me on Remicade and nobody believes me but I felt a difference that day!  Right after that I could poop a train!  A solid solid 6-10 inches long unbroken. That's the blunt part. It felt so good to poop and to poop like that was a small miracle in itself. Prior to that it was bloody painful diarrhea. 

About a year doing fine with Remicade I developed a hernia. So to have that surgery they wanted me off Remicade. OK. Have the surgery and I go back on Remicade. 

Never worked again. None of the biological drugs worked. It was back to pure hell. 

The worst thing about it while exploring pouches a surgeon said they should have never stopped the Remicade for the surgery. Bam!  

So now my colon is gone and it's as normal as I will be. 

But I'm good with it. 

That's my Remicade story. It worked and it worked so well I was surprised. Because I was really sick. That all went away because of Remicade. Liquid gold the nurses called it. 7 grand per bag. Ya. Expensive. 

So I guess if it works it works and you'll know it does  I did. 

I tried humira. One other. Stelara? It was an injection also but it's been awhile. I don't remember. Neither one of those did anything.

Moral of my story is if you get on it and it works. Don't stop! Because it may not work again.

I never tried it with my pouch. I had a healthy pouch. Just didn't work. So that's gone now too. And this is my normal. I'm OK with it too. No pain. Normal. 

Richard. 

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