CTBarrister posted:Still Standing posted:Normal is a relative term. Are things the same as before having UC/Crohns in the first place? No. There is a new "normal".
I totally agree. I consider myself to have a very normal life. But would the OP consider taking Remicade for 4 years & antibiotics for 24 to maintain a good quality of life to be normal? It’s my new normal, as is some chronic low grade inflammation. However I think the resultant quality of life achieved is normal.
My pre UC days were before age 9. I am now 56 years old. I have lived with 47 years of IBD. The BUC days (before UC) are a blip on my memory radar. All that matters is BC as in before colectomy and AC as in after colectomy. AC is much better.
I was on remicade before. Wouldn't I have delevoped antibodies to it now? Would it ever work for a J-pouch again when it was already ineffective for colitis?
I asked this in this forum but nobody seems to know the answer and tells me I probably never have to worry about it. But I do worry. I got the surgery because I exhausted all my medical options. Would going back to biologicals be an option for me at this point? I tried remicade, humira, simponi and xeljanz.