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Reply to "Incontinent but with good sphincter muscle tone"

Nick, I’m not suggesting that you leave leakage in place - of course you have to clean up. Since it sounds like it’s happening when your pouch isn’t full, it might be worth not trying to empty your pouch at those times, and just clean up the leakage. Too-frequent attempts to empty your pouch (when it isn’t full) probably do more harm than good. I do suggest that you call what you’ve described “leakage” rather than “incontinence.” 

There are plenty of folks here who’ve been successful after long periods with ostomies. Nevertheless, your sphincter might need much more time and attention than usual to regain its full function. How long can you hold a Kegel? How many are you doing per day?

Have you noticed any benefit from the Flagyl yet?

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