I’m so sorry to hear of your struggles and understand. If you haven’t tried Calmoseptine cream for the exit hole, you should - it’s so soothing!!
Just met with Dr and we are trying antibiotics. Sulfamethoxazole (Bactrim). But he feels this is more Crohn’s. But it it was, steroids would have worked. This Dr. said it looked like Crohn’s because there’s a big scratch in my pouch vs an overall appearance of infection. He also played down what the other Dr said about categorizing the inflamed tissue findings. (I’m with Kaiser). It’s so important to have one Dr as your quarterback when in a group practice like this! Which I do, so I’m grateful. Hoping antibiotics help!! Not leaving until we have this under control.