Hi everyone, my name is Kim and as sad as it is to hear you are all having struggles, i am very emotional right now and happy to not be alone .
Brandy, i am so sorry, u and I sound very similar ! Medication fails! all of it ! ugh! OI have had on pouch since 2005 and have had nothing but issues, multiple day surgeries , leaking bile that burns my entire butthole, bleeding! It’s so bad now that i work from home , haven’t farted without crappy my pants since 2005. wearing diapers to bed too. which is great at 53 lol.
I am sending u courage and strength!