What might be most effective is to identify who the lobbyists are for the company that makes the drug on the State and Federal levels, and join forces with them as one of the “faces” of the legitimately needy for this drug so as to humanize the other side of the issue. The lobbyists for the pharmaceutical industry likely have a lot of power to counteract overly zealous regulation.
A friend of mine from law school is now the chief lobbyist for the beer industry in the USA. I was chatting with him not too long ago and I was amazed that he knew and was familiar with all the microbrewery operations in CT although he hasn’t lived here for 28 years and none of these places existed until after he left. You might want to identify who is doing the lobbying for the manufacturer and offer your assistance.