Hi All,
Rather than repeatedly bugging Mysticobra personally, I'll ask the group. If it pertains to you, what was your experience going from the pouch back to an end ileostomy. Specifically, did it function as well, better, or worse than your first end ileo? My original end ileo worked great. I had one bowel obstruction early on then perfect function for the remainder of the year I had it. Ate everything, gained weight, exercised. The loop was another story. That was a nightmare with dehydration and frequent SBOs, but I also had pelvic abscesses complicating matters.
I ask because I was told by my GI (Dr. Shen) that he sees more difficulties in patients on their second time around, and that the ileo doesn't work as well, but he didn't elaborate. I wonder if he is biased by the philosophy to keep the pouch at all costs, but he is very experienced so don't want to dismiss his take on it. My CRS says that this has not been his experience. That his patients have had success with returning to the ileo. It's a terrifying thought that opting for a permanent ileostomy may not make things better. I mean, there aren't any other options at that point. I'm screwed. So much for the UC "cure." What a nightmare.