valli posted:First of all good luck wishing you a speedy recovery. I did the three step program lol.
I found my second operation creating the pouch the most difficult to recover from. My first operation proctocolectomy ( removal of my colon ) wasn't that tough.
The second operation was a extremely long one close to 7 hours, that will definitely take a toll on your health. I started to experience a lot of back door pressure. They went in through my incision just below my stoma and also my back door. The most difficult part was just getting around the first few weeks and I had very little energy. Walking tired me after 10-15 mins it took me close to a month to start feeling a bit better. I was on pain meds for about 5 weeks.
I have only had my J pouch for a month now, still getting used to everything. The butt burn is the worst. I now support all types of baby rash cream, still trying to find something that really works. Overall very happy I did it. It was a difficult 9 months but well worth it.
Let us know on here how it goes, good luck again.
I never experienced butt burn and been nearly 4 yrs since takedown.
However, whilst awaiting takedown, I experienced excruciating skin errosion around my stoma, which was alleviated within days by the application of ilex Protectant Paste, which I continued to apply around my stoma as a precaution until takedown, as it acts as a barrier.
Prior to applying ilex, I tried every cream, powder, potion and concoction to no avail.
ilex Paste can also be used to alleviate and prevent butt burn
It's beneficial to have ilex Paste and not need it, rather than need it and not have it.
In my opinion, ilex is by far the best and a necessity.