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Reply to "I need help with finding a j pouch specialist"

I am so sorry for your suffering! I love your mental mentality of not giving up, I think you are a warrior for not wanting to give up. I personally would have given up at this point and would go back to a ileostomy. I understand you want to keep trying and do everything you can do, that is a good thing. The only advice I can give at this point is : PATIENCE. If I were you, I would get second and third opinions with other colon surgeons and gastros ASAP! I want you to look for help immediately before things get worse. Call the colon surgeons and gastros in your area and do not be afraid to drive far out if you have too.

Good luck honey and keep us updated

REMEMBER TO TAKE MEDICAL RECORDS TOO TO EACH DOCTOR.

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