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I need help with finding a j pouch specialist

Ive given up on my surgeon although i care bout her a lot i think she's being extremely reckless, so for over 1 year and 4 months I've been living in so much pain, they just found out the reason is because i cant empty my j pouch fast enough because of scar tissue. I wrote here like weeks ago about contractions while they keep coming back and the nortriptyline worked for about 4 days.

  Here's why i think i need a new surgeon or someone more advanced so my dr has done 5 or 6 scopes and never mentioned a damn thing about a structure so my dr was on vacation and the NP called me in the office because she found a Nurse who could teach me how to use the home dilation kit right... so i get in there  and the nurse tries to use the dilatator and it wont go all the way in, so she does a rectum exam then she says oh no wonder hes in pain hes got a structure, so my last dilation a GI was suppose to show up and remove scar tissue, and 1 week before calls me saying that shes not coming to do that because she wants to see how the dilation go's well like always not good, so i message the GI saying thank you so much for bailing out of the operation now im back to pain and not emptying my pouch thanks... so anyways my surgeon gets back from vacation can now she wants to do a major surgery saying that its just a temporary ileostomy im sorry i dont believe her, she gave a game plan and im saying to myself how has that worked for the last year,, the game plan didnt work now did it

   I need advise im in so much pain because of a little scar tissue all they need to do is remove it that's it but knowing what they just wanna get rid of me by slapping a Band-Aid a ileostomy on it can call it good, i already know what they are trying to do and im not falling for it, they have surgery for me schedule next Tuesday im not doing it i can still kind of empty my pouch i just need to water it down with these  pills i have from my dr stool softener im not willing to give up on a perfectly fine pouch, every time she scopes me she brags about how good the pouch looks.. im not giving up on this pouch, thank you for your time

Last edited by StevenChar78
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