Unhappy posted:Everyone is different and so their reactions and experiences. In my case I have been very unhappy and feeling miserable ever since I was diagnosed with ulcerative colitis in 2008. I was healthy and never had any issues or problems with my digestive system until I went to a weightloss clinic in Mexico. In a matter of 4 months taking the so called natural pills I started having abdominal pain followed by urgency and diarrhea. Then my pain was getting worse and the diarrhea turned into blood. I got hospitalized In December 12 2008 and on Dec. 28 2008 I underwent total colectomy. Followed by the 3 phase procedure of the j pouch. After final takedown in October 2009. During the times I had the temporary ileostomy bag it was a nightmare because the bags never stuck to my skin. I had to be changing the bags 3 times daily. This was a very traumatic experience. When I had my takedown I developed a rectovaginal fistula. The colorectal surgeon said that to fix the fistula he had to do again the 3 phase surgery. I panicked I was so mortified having to deal with the bag again that I decided to wait. Until another doctor told me he could fix my fistula without having to use the bags. This doctor messed me up. He didn't repair my fistula but left me to deal with incontinence. I still have to go restroom every 3 or 4 hours day and night. So I never had a good night sleep since then. Now same issues continue, the abdomen pain, the urgency and diarrhea, getting nauseous and not eating good. ☹😢
I'm so sorry you went through all this. Maybe it's worth rethinking about the 3 step surgery again. Because they way you are right now is no condition to stay in. I had problems with my bag too until my ostomy nurse told me there is solutions for everything and she helped me to find a system that worked for me. I haven't had problems with it since then. I made a thread here asking if you would go back to the ileostomy if you had to. I definitely would if my J-pouch failed.
I hope you find solutions and I wish you the best.