Scott, I forgot to include something in an earlier message in response to yours about Entyvio. I have been in 360mg of straight codeine daily for 20 years since my surgery. I have never stopped taking it. I have tried both Flagyl and Cipro in the past for supposed cases of pouchitis. Neither of them ever helped me. Other than the codeine, no medications have ever really done anything to help me. That includes, enemas, suppositories, imodium, Humira, Remicade, and so far Entyvio. I don't have a lot of confidence in medications as a result. Prior to Entyvio, I never changed anything medicine-wise.
I still feel kinda lousy. I don't often count my daily bowel movements but maybe I should. One thing I can say is that I have been waking up more than normal through the night to go. Usually it's once a night at the best of times. In worse times, it's 2-4 times a night. In the worst of times, which are quite rare, I don't wake up till it's too late...
At any rate, these days a majority of my toilet trips sound like the bombing of Pearl Harbor! Not pretty and you hope that the toilet has decent water pressure in the bowl! Also, without my bidet toilets at home, I would have another painful body part to deal with...