Reply to "I hate my pouch"

skn69Member

Hey Ally,

I am so sorry...I know that all of the problems are intimidating, exhausting, frustrating and impossible to live with on a day to day basis but what are the options?

I am not an expert but there are 2 major ones that I know of...an outside bag and allow your pouch to rest/heal if possible and/or removal or an internal ileo that tends to have fewer incidents of poucitis due to/thanks to the fact that we empty it completely (liquidy stool) but has its weaknesses like a fragile valve.

No one should live with chronic pouchitis...but those are the only options that I can think of to keep it at bay or stop it completely.

Are either option imagineable to you? Are they feasible?

I do not know about you but I would personally (at my age) try the temp ileo option and see how you do before moving forward to a permanent solution. You may be able to get some relief that way and see clearer once you are not suffering.

Huge hugs and I hope that you find a liveable solution

Sharon

6/22/152:07 AM

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