Reply to "I don’t remember eating glass…."

HeatherVMember

Thanks so much for your responses. Although I feel horribly that you all have these troubles, I take comfort in knowing I am not alone.
scott and Richard - I have tried the nitro (didn’t help and made my blood pressure drip) and diltiazem ointment (tried 4 times and each time caused an incredible itching rash).

I take oxycodone and linitial to slow down but it constipates my pouch to where o have the feeling to go (tenesmus) but I can’t go so I push and it makes it worse.
sarah - I have not tried the psyllium husk but will be internet shopping now to find exactly what you describe.

I see Dr Feza Remzi at NYU in 2 weeks. I can’t go back to an ostomy but can’t live with this pouch and the awful quality of life I have. THANK YOU for your responses and your support 💕

7/24/2211:49 AM

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