Reply to "Humira not working - Now what?"

BrendansMomMember

Hi Rachel,

His GI said "we'd know in a month if it was going to work" so I'm thinking he won't suggest waiting it out. Meanwhile DS has a dozen poops/day, getting up at night, accidents at night etc.

He certainly does not eat as well as he could. I put him on the SCD when he had the UC and it was terrible - he hated it and I was stressed trying to make everything from scratch. A neighbor recommended Paleo recently and even bought him a bunch of dry pasta, etc. but he loves his carbs and lives on bagels, grilled cheese, pizza, chicken, toast, crackers plus a minimum amt of fruits and veggies. He is 16 after all and just won't get on-board with changing his diet. It doesn't help that the GI won't prescribe nutrition changes either.

BTW he's been taking VSL 3 DS almost every day since the start of pouchitis and I give him an extra probiotic with his supplements daily.

5/13/155:50 PM

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