Hi All,
I've been lurking on this forum since about last September. My 16 year old son had 2-part surgery starting in August 2013, j-pouch connected in December 2013. After a rough recovery of about 2 months he did really well until the following August 2014 when he started exhibiting signs of pouchitis. Diagnosed with pouchitis in September. Put on cipro and flagyl - didn't work, he got worse and was hospitalized in October with IV antibiotics and fluids. Within a couple days he was much better. Went home on more oral antibiotics - Entocort and Augmenton. By December we determined that wasn't working so went on prednisone to get him through the holidays. Prednisone not ideal - side-affects not worth it. After the new year tried xyfaxin - didn't work. Then oil of oregano for a few weeks - no consistent improvement. Meanwhile they were pushing us to do the Humira. We finally agreed but after 5 weeks on Humira - no improvement. We have an appointment with his GI at Boston Children's tomorrow. I am speaking to my son about going back to ostomy. Thoughts?