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Reply to "How old were you all when you got your J-pouch?"

I had anal atresia at birth, part of a group of birth defects that appear together called VATERS syndrome. I also have Ehlers Danlos syndrome which is a connective tissue disease that impacts the creation of collagen (the glue that holds things together in your body). The result was that every time that they tried to surgically fix the anal atresia they made it worse until I no longer had a functioning sphincter. I also had IBD (or IBS, I can never remember) but I had bloody stools and horrific cramping for years.

Add that to no sphincter and you have the picture. Life was hell. 2 failed Gracillis muscle transplant surgeries to try to create a functional sphincter and I was done. I had already had a colostomy that wrought havoc on my skin (collagen again) and I had to find an alternate solution.

The Kpouch was the miracle that saved my life and gave me a life.

It has been 41 yrs and I am still thrilled.

Sharon

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