Reply to "How many out there got a J-Pouch only to find out later you have Crohn's?"

GinLynMember

Sort of. I have recently been reclassified as Crohn's (within the past 18 months), but there have not been any definitive signs of ulcerations in my small intestine. The reclassification is based on the number of very bad fistulas I have had over the past 5 years and a couple of other (self-reported) symptomatic things. My surgeon decided to reclassify me so that I would get faster attention when seeing new specialists & in case of emergencies -- plus her gut feeling that it was some underlying Crohn's. But, again, no actual ulceration has been found definitively.

Gin

3/12/156:33 AM

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