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Reply to "How is this possible!"

Poucho, thank you! Thank you!  I can't believe all this stuff is going on with my son.  He can't cut a break!  We were going to see Dr. Dietz in Cleveland.  I was told he was the fix it guy.  Now I'm hearing a lot about Dr. Shen.  Because of the PSC we need to stay at Weill Cornell.  But Jeff and I decided that if Dr. Shulka with the help of Dr. Milsome can not fix this pouch then we are going to go to Cleveland.  Who is better at the fix it stuff?  My surgeon in NJ was going to try the glue stuff.  His other thought because we can't find the leak, was going to go in with a wire (along with interventional radiology) and then get the glue in that spot.  But this sounds like a new leak.  I'm thinking that maybe the old leak dried up. But it sounds like there is either the original fistulia and a new abscess or and new fistulia and new abscess.  Which for the life of me have no idea how that could happen since he has been diverted since March.  I just wish one thing would go right!

 

thanks again.

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