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Reply to "How do you scream on the computer?"

Granted, being a nurse, I am biased. But, the way I see it, the facts and realities of our surgical history seem like common knowledge to us and we are dumbfounded when we frequently encounter healthcare professionals who know practcally nothing about the j-pouch. However, we are not common, and there is so much out there that doctors and their staff must know, it is impossible for them to know everything. I never have to repeat my story to the same provider, so I guess they learn. I remind myself that they have hundreds of patients and they do not see me often, some less than once a year. So, I cut them some slack.

Another thing I try to tell myself, is that it's probably a pretty good thing we are rare, don't you think? Hopefully, we'll become even more rare if they find better treatments to avoid j-pouch surgery.

Still, it can be frustrating to have to advocate for yourself all the time.

Jan Smiler
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