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Reply to "How did you decide it was time for surgery?"

Hi Sara,

I was diagnosed with moderate to severe pancolitis in April 2015 and after hospitalizations, C-Diff, blood transfusions, TPN for several weeks, shingles while in a nursing facility for rehab and attempting Remicade with limited results, I decided to have surgery, three steps.  It just seemed like one long flare, feeling only slightly better at times.  I was 60 years old for my first surgery, so age was a factor.  I was reasonably healthy, at least healthier than when I had lost 35 lbs.  I had gained back 25 prior to surgery.  I had my first surgery in November 2015 and my last was August 2016.  It will be 5 years since takedown this August.  I am doing pretty well, active, hiking and biking during the warmer months.  During the pandemic, we got a lot of outdoor exercise, winter hikes/walks and snowshoeing.  I have been more active since my j-pouch, also since retirement.  The first 6 months to a year are an adjustment period.  Also, I take Lomotil every evening so I don't have to get up during the night and during the day, usually once if I will be out for a while.  For me it was a no brainer as to getting surgery.  Good luck with your decision.

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