I was diagnosed with moderate to severe pancolitis in April 2015 and after hospitalizations, C-Diff, blood transfusions, TPN for several weeks, shingles while in a nursing facility for rehab and attempting Remicade with limited results, I decided to have surgery, three steps. It just seemed like one long flare, feeling only slightly better at times. I was 60 years old for my first surgery, so age was a factor. I was reasonably healthy, at least healthier than when I had lost 35 lbs. I had gained back 25 prior to surgery. I had my first surgery in November 2015 and my last was August 2016. It will be 5 years since takedown this August. I am doing pretty well, active, hiking and biking during the warmer months. During the pandemic, we got a lot of outdoor exercise, winter hikes/walks and snowshoeing. I have been more active since my j-pouch, also since retirement. The first 6 months to a year are an adjustment period. Also, I take Lomotil every evening so I don't have to get up during the night and during the day, usually once if I will be out for a while. For me it was a no brainer as to getting surgery. Good luck with your decision.
Thank you! That's great you are able to be so active now. That's reassuring to hear. That's what I want to get back to!