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Reply to "How did you decide it was time for surgery?"

I've tried Remicade, Humira, Entyvio and Stelara. None have worked other than Remicade for only 2 months. So all I have left is the Xeljanz. I guess there are also clinical trials but I don't think I want to waste my time on those and taking meds that haven't even been proven safe yet. I'm just getting really sick of all the waiting and I'm getting really worried about steroids and my bone density. I got a stress fracture in my foot from just walking 1 mile a year and a half ago while on prednisone, and now I'm scared I have another one in the same spot. And again, all I've been doing is walking, nothing strenuous.

It is a long process trying all the biologics because they can take months to work. I've been going through and trying them all for almost 2 years now. It is kind of exhausting trying meds over and over for 2 years, tapering off steroids, symptoms coming back, trying to get the flare back under control, over and over. And worrying about the meds giving you bad side effects at the same time.

Last edited by Sara14
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