Update: we've had the following so far
- Virtual appt with pediatric GI at our hospital here
- Labs - all the usual IBD labs. Her HGB actually went up between labs a couple weeks apart even though she was still bleeding and had her period. She's in really good physical shape and she's young, so I know that helped. C-Reactive Protein (CRP) and Sedimentation Rate (Sed rate) were normal on all 3 labs so far. The only indicator of IBD has been the fecal calprotectin test which was 397 (reference range is <= 50). Note: Cigna recently decided that fecal calprotectin is unproven and experimental and won't pay for the test. Bastards!
- MRE (MRI) of her small bowel looked normal - so no obvious signs of inflammation there (that's good - leans things towards UC
Her EGD and colonoscopy are scheduled for tomorrow afternoon. So our 13 year old is learning the joys of colonoscopy prep today while she's at home instead of at school. But at least Miralax is slow and gentle, unlike GoLytely, Fleets phospho soda, or those other nasty things they used to make us drink.
We should have the visual results tomorrow afternoon and biopsies next week sometime.