I worried for years about my son getting sick. Still do, though he appears to have dodged the bullet.
Our kids take the good and the bad from us. It sounds as though you're modeling a positive approach to living with this disease, and there's plenty good about that
Your post made me recall that Mount Sinai, many years ago, began focusing research on IBD genetics. I did a quick search and see that they still do.
https://www.mountsinai.org/abo...ry-bowel-diseases-pr