I am so sorry that you are going through this. It is truly awful. I can't even imagine being told you might not survive and not have any family with you holding your hand.
Right now you are under the influence of immense stress, fear, discomfort and pain. You have no definite answers and the treatment is not going smoothly. I know this, though, just as you do: the only thing that you can absolutely count on is that things will change. Most likely for the better because it sounds like it can't get worse.
I'm not going to say anything stupid like, "look on the bright side" or "be grateful for what you have". I have an S pouch, I have Crohns, I get so f'ing tired of this whole thing sometimes too because it is just NEVER easy. Getting your head around that is hard.
Can you just do one thing? Don't make a full assessment about the level of shittiness of your life while you're under the influence of all of the factors I mentioned above. Rest your brain and allow yourself to be sick, to be powerless and not have a plan. Just take few days off from thinking.
Easier said than done. Is marijuana legal where you are? If so, I highly recommend a vape pen and a strong hybrid to to get you through the next couple of weeks while your body does it's thing and docs figure out a plan for you