TE Marie posted:I hope you are feeling better. I really empathize with you as I went through years of a bad acting j-pouch before I had it removed. I know you aren't ready to go this route uet but should you ever have any questions about that surgery send me a PM.
I didn't want this either but my quality of life has improved and I wish I'd had the surgery 18 months before I did. I first was just diverted to a permanent ileo in hopes my j-pouch would get better without use. That surgery was laproscopic so is one thing you might want to consider. My end ileo is much better than the temp one was.
Thanks for your reply, TE Marie. I have been told by two surgeons at one hospital that laparoscopic surgery is not an option for me, even if the aim is to rest the j-pouch. I am in Australia and don't have private health insurance, so it's not easy for me to seek out any other surgeons. I'm left wondering whether no surgeon anywhere would do it laparoscopically, or whether it is that Australian j-pouch surgeons haven't taken up this procedure yet.
I heard that there is a new j-pouch clinic starting at another hospital, so I am going to try to get seen there so I can access to a different group of surgeons and get a second opinion.
I am really glad that you are feeling better with your perm ileo. I sort of wish that I had just bitten the bullet and gotten that done as soon as things went wrong (4 years ago).
Unfortunately, I'm in a difficult situation personally at the moment – had to move out of my house, and am staying with my dad, which is not ideal because lately there is quite a bit of noise here. It used to be so quiet, but neighbours/nearby businesses change, and at the moment I can't imagine convalescing here. I also have PTSD which means I get a fright when I am woken up by a sudden noise, and it takes me ages to get back to sleep.