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Reply to "Has anyone tried alternative therapies for pouchitis"

Just in case anyone is interested I’m about a week on in my personal treatment of my pouch-itis and it’s working again.

I don’t know about anyone else but I seem to have a short memory for the pouch-itis. Once I feel well again I gradually add a few indulgences that I probably don’t need e.g. alcohol sugar and  carbs. When I get a flare up  of pouchitis, I remember that I wasn’t supposed do these things with wild abandon. Anyway I’ve had a timely reminder that I need to take better care of myself.

One thing that I am wondering if anyone else experiences is, that the first symptom that I get with my pouch-itis are  chronic headaches and migraines. Having said this I am very susceptible to headaches and migraines. I also had an unbelievably sore tight back between the shoulder blades and neck. I wonder if this is an unusual reaction to pouchitis but to me it just indicates a level of inflammation in my body? Does anyone else experienced this?

Anyway this morning is the first morning I’ve woken up without a cracking headache and I didn’t need to get up in the night to go to the toilet. To me this is an indication that I am definitely on the right track now. This time I need to keep it up a bit longer and better.

My regime is to cut sugar carbs, alcohol, coffee and take wild oregano oil that is in a base carrier oil with some water approximately three times a day. I often alternate this with olive leaf extract in water. Then in the evening before I go to bed I take high strength probiotics. I certainly have to live through a fair bit of discomfort until it starts to work again. However I really don’t want to get stuck on the antibiotic roundabout so for me putting up with feeling pretty awful is definitely worth it. I’m worried that if I keep blasting my body with antibiotics any Microbiome that I have worked hard to improve will just be obliterated. I was on steroids for so long that I couldn’t get off them before my surgery and I’m afraid that the same thing could easily happen with antibiotics. I totally understand how this happens and that for most people they are a bit of a lifesaver but I want to explore other before going to antibiotics.

Last edited by FelixGust
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