Reply to "Has anyone been hospitalized for total blockage of their J-pouch?"

@Drbev603 posted:

OMG! Duck11 your response is so helpful! I feel so bad that you had to go through all that! This was my only blockage 🙏 so far but I'm not sure that I KNOW when it is starting to reverse it! This time with the salad I felt really gassy and laid down. I tried going potty thinking that would relieve it but didn't  The blockage got worse on it's own! Within 2 hours I was in fetal position on my way 2 ER. I didn't notice any other warnings. What were your SIGNS? Was your blockage at the COLLAR? Do you know what the surgeons did to correct your problem. Thanks so much for sharing! I know you are helping alot of us!🙏❤

For me the signs were pain and just feeling really awful, always in the same place so as soon as I felt it starting I knew to switch to liquids, but it didn’ t always work…….The pain was sharp and constant, and I’d feel nauseas with it, and generally couldn’t pass any stool.  The surgeons lysed adhesions and gave me a diverting ileostomy (I asked for one as I was done with dealing with the problems). I still need more surgery to figure out what to do with the disconnected j pouch, but I’m super healthy again now and can deal with that later.when my kids are older. I had to go through blockages nearly 3 years before they would operate. The last year I was admitted to hospital once or twice a month with blockages for 9 months strait, lost 35 pounds and had to quit working, so it had to get that severe before they’d take action because of the risks. It’s a terrible situation when there isn’t a clear cure and/or surgery could make it worse! That’s why I opted for a stoma. I said I’d never get one again in a million years but when you suffer like that you’ll do anything to make it stop, so here I am 🙃 and very happy with the choice.