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Reply to "Has anyone been hospitalized for total blockage of their J-pouch?"

@duck11 posted:

I’m sorry you experienced a blockage-I am, unfortunately…a blockage expert 😏I had 27 blockages over 2.5 years and FINALLY got surgery last November and am much better now. It was a hellish period of life, over a dozen NG tubes, gastrograffin, etc.  I had a j pouch with zero troubles for 18 years and suddenly started getting them. Before that I ate anything, even popcorn, with zero trouble.  

Anyway, heres a few things i learned in my blockage escapades: as soon as you feel that blockage feeling, switch to clear fluids only, and drink coke (seriously, if it’s a partial blockage, it can sometimes clear them). If you start feeling really nauseas or throw up, get to the ER. Heat and walking can help (which really isn’t feasible if you’re in that much pain, but it can help). Diet wise, if you start to get them more often, like a few times a year, a low residue diet might help and still allow you to get all your nutrients. It’s a pretty bland diet though, blah.



Blockages are awful, I had no idea about them twenty years ago when I got j pouch surgery, or what they can do to your life if they happen more often. I seriously think I have medical PTSD from my experience. It seems surgeons generally won’t operate for blockages unless they are going to rupture your bowel/be life threatening, or yo have a severe case like I did. I’m crossing my fingers for you that you won’t get another…!

Do you know why you suddenly started getting so blockages all the time when you previously never had a problem in so many years? What changed?

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