Skip to main content

Reply to "had my scope, can someone help explain this to me? ..."

I too have pouch ulcers. Many..right now I have 5. Different locations & size. Dr S hen always treated me with kindness & respect.  He did a procedure a few yrs ago by injections of sugar water  into ulcers. Crazy sounding but they were bleeding ulcers & that stopped the bleeding but didn't stop them from existing. Dr Philpott who i now see at ccf says that is to be expected the pouch is compromised with infection & inflammation.  Waiting now for entyvio infusions to be approved for every 4 weeks instead of 8. ( been on for over a yr now) not sure what yo do to get our pouches healthy! Some day I pray that the docs will find a cure. Right now I'm in so much pain.  Right side hurts so bad & rectal pain is unbearable.  Just finished 2 courses of flagyl. No relief. After 31 yrs. Perhaps time to think about surgery 

 

if that is to be expected then why are you on biologics? I also have Dr Philpott as well when Shen left, I like her but not comfortable with her yet and Dr Remzi told me to see Dr Dietz at University who he trained.

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×