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Reply to "had my scope, can someone help explain this to me? ..."

I too have pouch ulcers. Many..right now I have 5. Different locations & size. Dr S hen always treated me with kindness & respect.  He did a procedure a few yrs ago by injections of sugar water  into ulcers. Crazy sounding but they were bleeding ulcers & that stopped the bleeding but didn't stop them from existing. Dr Philpott who i now see at ccf says that is to be expected the pouch is compromised with infection & inflammation.  Waiting now for entyvio infusions to be approved for every 4 weeks instead of 8. ( been on for over a yr now) not sure what yo do to get our pouches healthy! Some day I pray that the docs will find a cure. Right now I'm in so much pain.  Right side hurts so bad & rectal pain is unbearable.  Just finished 2 courses of flagyl. No relief. After 31 yrs. Perhaps time to think about surgery 

 

2 years ago I had mass bleeding. Shen stated the bleeding was from the suture line midpouch. He stated there is lack of blood flow there normally and ulcers are common in that area, why mine bled he is not sure but he also used clips and injected (sucrose)or sugar, and plugged me up with a tampon for rest of day and that did the trick

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