Thank you both so much! We are taking them to Riley's Children's Hospital in Indianapolis. I keep looking for the rainbow in the storm and pray that once we make it through the year, their lives will return to some sort of normalcy. Their dad was an only child and his mom passed away at 29 of FAP. The grandfather also passed away from FAP so it is very prevalent in their family. The girls were identical twins so we knew if one had the gene the other would, and unfortunately that was the case.
Christine, how long was your son in the hospital and out of school? I know this could vary but I thought at least we could have an idea.
Thank you again for your input. I am just at a loss for what to expect.