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Reply to "Good News."

@Cindy R posted:

I don’t really like having a ileostomy. I’m worried about issues with the j-pouch. How long did it take to recover? How many times do you go in a day? What about pain and accidents. What makes you love it?

I can only speak for myself but I got my J Pouch in 1992, non laparoscopic, 2 steps. Like Scott, step 1 was a cut from ribs to pubic bone and I have a long scar to prove it. I had many complications including ileus, infection, and then yeast infections due to the temporary ileostomy which was something of a nightmare for the 3 months I had it before step 2 (mainly couldn't get a seal, and constant leakage leading to the aforementioned yeast infections).

I eventually recovered from the surgery and although I have battled chronic pouchitis, I have worked for 30 plus years with a J Pouch as a trial attorney and am now closing in on 60. My quality of life is very good, albeit with treatment which is Remicade and low dosage antibiotics.

Although it was a road that wasn't without some bumps, I have no regrets at all about having had J Pouch surgery.

I would estimate 4-7 bowel movements daily - much depends on staying on top of treatment, limiting sugar and carbs etc. Everyone has to adjust to the J Pouch they have and figure out a diet and regimen that works for them.

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