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Reply to "Going from Jpouch back to Ileostomy"

Hi Danny,

your issues are even harder than mine.

I don't have cramps or too much gas. I can ease my chronic pouchitis with budesonide, and once a month I take antibiotics for about one week (which has the best effect and reduces gas as well as any smell).

My former meds include Remicade, Entyvio, Aza and Stelara. Now I'll try Adalimumab as a second TNF-alpha blocker.

My permanent inflammation in the pouch and the ileum terminale has been diagnosed to be similar to Crohn's at the last scope, while in the 16 years before they always said it would be colitis-like.

I'm running out of options and patience by the time and I'm also thinking about an ileostomy. I already was recommended to do so after a consultation at hospital. Unfortunately the last part of my ileum is also affected and would be removed for a permanent ileostomy I guess. So a loop ileostomy would be a possibility to see how I get along with a stoma with the option to go back to the pouch. But of course I'm not keen on another surgery and I will wait till Corona is over anyway.

Hope you'll get rid of your problems with the pouch soon.

Steve

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