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Reply to "Going from Jpouch back to Ileostomy"

Hi Michael,

This disease is very difficult and could be quite isolating.  Also, at the same time you are suffering.  We here on this site can help.  First, I would try to find another GI doctor in Canada that may have more experience with J Pouches.  Maybe at one of the big academic hospitals.  I think your current GI doctor may be out of ideas.  It could take months to see him or her, but it may be worth it.  You can probably google some potential doctors and make some calls.  It seems that many of us find a solution when we team up with a Crohn’s/Colitis specialist.  Three years is a long time, and it must have been hell, but there is hope.  It seems like the vast majority of patients do great with an end ileostomy after the loss of a J Pouch, hopefully you will get some help from a new doctor to improve your J Pouch function, if not you can always go back to an ileostomy and you will be healthy again.  Have you been on any antispasmodic medicines?  It seems like you have a very sensitive J Pouch.

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