Oh, Thank you! I have the Smith & nephew brand akso, I will try that! For pouchitis, other than the blood output, I was tired all the time and had little appetite. No cramping or pain really. However, the longer I ignored my symptoms, I became weaker & intubation was sensitive, sometimes painful. I do hope you don't have pouchitis, but sounds like you are getting ahead of it & seeing Dr. Kiran? Xiafin & VSL, that is what helped me.
Valve is doing well, stronger, gained some weight & endurance. Back to work in a week. I'm getting daily infusions for hydration & potassium. Absorption still a big issue so I take liquid lomotil to help. I have a PIC line in, so most everything is infused right now.
When I have really thick stool & sluggish output I follow Sharon's advice & drink grape juice. I use miralax too when it is realky, really bulky & that brings it all out.
Thanks ladies! Kara