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Reply to "Getting depressed about my ongoing anemia"

Pouch2021

Yes there is definitely a decent sized sub section of J Pouchers on here and on the Facebook group that have developed iron deficiency anemia, and as i said my surgeon is not alarmed by this, he has many patients with it and says it is due to malabsorbtion and our new plumbing, it kind of sounded from his own point of view that it was a mystery he couldn’t fully explain.

His explanation is pretty frustrating as i had gone for 12 years with the pouch without any iron deficiency problems, and then it kind of happened out of nowhere.

I was tested for Celiac and it came back negative, had plenty of blood work done, had a CT scan, Pouchoscopies etc and nothing was found.

Which brings me to arrange an endoscopy so they can check the upper GI tract, which seems like an obvious place that could be causing the problem, it’s just that i have a bit if a phobia about this procedure and may need to be put under general anasthetic for it.

Regards

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