Kh1988, your symptoms seem to be exactly the same as mine. I have good days, but my body has struggled releasing stool since my takedown on 3/21/18. Common sense tells me that my stool would be liquid and easy to release but that is not the case. My j pouch is doing everything it can to act like a normal rectum and form a stool, so of course that makes things difficult. Oatmeal helped for a couple of weeks, but without miralax twice a day or stool softeners, or both, it just doesn't work how I think it should. My 42 year old neighbor Nancy had 1 polyp turn into stage 4 colon cancer diagnosed in May of this year and she died Oct 2 and didn't even have FAP or a genetic issue, & I have both FAP and a genetic disposition to colon cancer and at 53 had over 1000 pre cancerous polyps discovered during my 1st ever colonoscopy and am still completely cancer free. Everytime I have a difficult day I think of Nancy getting a colonoscopy after my issues scared her, & 4 months later she died. It doesn't help me to feel better during a difficult day or night, but it sure puts things into perspective.
Gosh, we do sound so similar! I’ve been doing miralax twice a day now and it helps but still not as much as I’d like. Seems like one dose of the miralax helps one time and then I’m back to being blocked up again and unable to empty unless I take it again. Water enemas seem to work best for me. Once I use one, I’m able to sit down and my body will let it empty it right back out. My doctor said when stool is basically water, the sphincter just cannot hold that back and will finally release where as thicker stool is much easier for the sphincter to hang onto. My body is ridiculously good at absorbing fluids and leaving my stool thick. It doesn’t matter what I eat! I swear I’d love to have some diarrhea hahaha. Not really, lol but just once I’d love to have my stool naturally thin. Just terrible about your neighbor! That’s so sad. It does put things into perspective though. Sometimes when I get down, I also think about others in waaay worse situations and I realize how fortunate I really am.