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Reply to "Functional pouch obstruction/catheter emptying"

  • I’ve started trying the catherization here in the hospital. It is not working at all for me. I ate 3 meals yesterday and breakfast lunch today and nothing is coming out of me at all-just a dribble. I had horrendous pain after breakfast and my blood pressure dropped to 80/50 and I felt lightheaded and cold, but stabilized with more iv fluids and some pain/nausea medication. Now this afternoon, I feel perfectly fine. It’s so strange! There is still nothing out of my pouch. I would think if the j pouch emptying is really the problem, the catheter would relieve symptoms, so maybe it’s something higher up. It’s the long weekend here so all my reg. Drs are gone till Tuesday. 
  • any thoughts on getting the catheter working better?

  • they also did A motility test with small bowel follow through and said it was normal. Yet, I had the same test in January and it took 4 hours For the contrast to get to my pouch and then just got stuck at the inlet. I feel the longer I’m here the more confused I get 😒

  • scott: my defocography showed my pouch was only malpositioned when I was trying to use it, it’s like it moves into a position that won’t work went I try to go, then moves back. I’ll speak more to the colorectal surgeon Tuesday about it.
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