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Reply to "Functional pouch obstruction/catheter emptying"

I’m in the hospital...again... it’s been so many times I’ve lost count and I can only laugh at how ridiculous this is. 22 or 23 admission in 2 years?  I came to a new hospital because I have other drs here treating a septic arthritis joint and thought it’d be easier to be in the same place. Anyway, my colorectal surgeon I was dealing with is at another hospital, but because of the pandemic she hasn’t been able to finish her assessment because they can’t do scopes etc right now. The surgeons at this hospital said they might be able to help me sooner (even if it means taking out my pouch for good). I don’t want to lose continence, but I just can’t be sick like this anymore-it’s been nearly 2 years. My little boy who is 20 months is learning to talk and now says “ mommy sick” 😕as part of his first words. I haven’t even been able to try the irrigation yet as my surgeon at the other hospital  said she had to do a scope first to fully recommend next steps.  I guess I’m just so annoyed being left in limbo like this for months on end and ending up in hospital again because of it. I get there is a pandemic, but it doesn’t seem right just leaving patients to fend for themselves in the meantime. Not sure what I’m looking for in this post, just needed to vent to people who get it. It is really taking a tole on my mental health.

Last edited by duck11
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