duck11, so sorry you're having such a hard time, and during a pandemic no less. It is so hard to feel like you have to fend for yourself when dealing with such difficult health issues. Hang in there. I hope you can get the help you need soon.
David W, my doctor has mentioned the possibility of a permanent ileostomy too. I'm wondering if you had the 3 surgeries for your j-pouch (colectomy with ileostomy, j-pouch creation with ileostomy and ileostomy takedown). If so, did you have any issues with your 2nd ileostomy during the 3 part series of surgeries? My first one was great, my 2nd one leaked horribly. I'm wondering how your new ileostomy compares to the other two. I'm worried if I went to a permanent one it would be like my 2nd one where I had to change the bag every other day to keep it from leaking. Also, did they put your new ileostomy in the same spot as the old one? After all those surgeries my skin now has a crease where my stoma scar is and I'm worried that if they put a new stoma there it would leak even more because I don't have a flat surface to stick the bag on. I would love to hear about your experiences! Thanks!