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Reply to "Functional pouch obstruction/catheter emptying"

SJAN810, the reason I had the defecography ordered was because of difficulty emptying fully—I’ll go and have to go again 20-30 minutes later. Recently I’ll sit on the toilet for 20 minutes or more and will have several rounds of gas/stool until I feel like I’m done. My frequency stayed around 10-12x in 24 hours with a lot of burning before and after. I had a manometry test a few months after takedown (this was at CC in 2017) and was prescribed pelvic floor PT by my surgeon.  I had one PT session in Cleveland — I live in Roanoke, Va. and had to quit the PT as I couldn’t find a therapist with that experience. Same thing with a local GI. I’m now going to UVA Digestive Health Center - a 2-hour drive. My new GI doc there recommended a therapist at UVA. I had 4 months of PT with biofeedback which helped a lot but I’ve never really felt “good.” I also seem to get cuffitis and/or pouchitis regularly. Tried Xifaxin which did little, but now on Cipro which has my frequency down to 7-9x. Still have the cuff pain and using Canasa which helps some. My doc thinks I may still have pelvic floor issues, hence the defecography test. Also using Visbiome 2x a day.

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